Rare Disease Day 2015
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Saturday, March 30, 2013. The title of this post, 1,825. Refers to how many times the sun has come up since I had a heart attack out of the blue five years ago.
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What is Pulmonary Fibrosis? Idiopathic Pulmonary Fibrosis Webinar. What can I do to help? Travelling away from home. Hoping for the best, planning for the worst. Pulmonary Fibrosis Patient Support Day Webinar. Specialist ILD Centres in England. Derby Pulmonary Fibrosis Support Group. Hull and East Yorkshire Support Group. Norfolk and Norwich support group.
Thursday, November 7, 2013. Our Blog Has Moved! It is just a little over a year since the passing of our founder and dear friend, Jennifer Jaff, who will always remain with us in spirit. To commemorate her extraordinary contributions on behalf of those with chronic illness through advocacy, education and public policy, we have changed the name of our organization to The Jennifer Jaff Center. We are very pleased to announce that our new website, www.
Thursday, April 16, 2015. I am mad at him. I am mad for him.
WHAT DOES RAREDISEASEDAY.ORG LOOK LIKE?
CONTACTS
Julia FITZGERALD
Yann Le Cam
Plate-forme Maladies Rares, 96 Rue Didot
Paris, 75014
FR
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We observed that rarediseaseday.org is employing the Apache/2.4.7 (Ubuntu) operating system.HTML TITLE
Rare Disease Day 2015DESCRIPTION
The main objective of Rare Disease Day 2015 is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.PARSED CONTENT
The domain has the following in the homepage, "Rare Disease Day 2015, February 28." We observed that the web page also stated " What is Rare Disease Day? About our official partners." It also stated " What is a Rare Disease? Living with a rare disease is the theme for 2015. The Official Video for Rare Disease Day 2015. Highlights from past Rare Disease Days. Show your organisations support! Raise and Join Hands! Show your solidarity with people living with a rare disease! Share a video or photo of your experience living with a rare disease. Join us on our Social Media! PRIMERAS JORN." The header had Rare Disease as the highest ranking keyword. This keyword was followed by Rare Diseases, Genetic Diseases, and EURORDIS which isn't as urgent as Rare Disease. The other words the site uses is Rare Disease Day. Maladies Rares is also included and will not be seen by search parsers.SEEK OTHER WEB PAGES
Goals and Plans for 2015. History of Rare Disease Day. What is a State House Event? Press Kit and Resources. Countdown to Rare Disease Day! Tell your story or follow ours in our active online community.
Témoignages de patients atteints de maladies rares et de leurs proches. Pour soumettre vos témoignages, utilisez le formulaire en bas de page. Start your own free website. A surprisingly easy drag and drop site creator.
WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. The 2015 Rare Disease Day theme is Day-by-day, hand-in-hand . Support the campaign by liking the Facebook page.
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Medical research is offering new hope to more than half a million kids who suffer from rare genetic diseases. Our provincial governments need to step up to the plate and make. Rare Disease Foundation - Genetic Testing Petition. The Face of Rare Diseases.