Rare Disease Day USA Alone we are Rare. Together we are Strong.
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Thursday, November 7, 2013. Our Blog Has Moved! It is just a little over a year since the passing of our founder and dear friend, Jennifer Jaff, who will always remain with us in spirit. To commemorate her extraordinary contributions on behalf of those with chronic illness through advocacy, education and public policy, we have changed the name of our organization to The Jennifer Jaff Center. We are very pleased to announce that our new website, www.
250,000 Americans are diagnosed with adrenal insufficiency. 6,000,000 more are considered to be adrenal insufficient yet remain undiagnosed. Scroll down to learn more.
Tuesday, May 5, 2015. Oils are no Substitute for Actual Medicine. Sorry for not making a post yesterday. I am not a medical doctor, nor have I a.
Life in the Autoimmune Lane. It starts on my shoulders blades and goes down the backs of my arms, then swirls above my wrists and onto the palms of my hands.
Utah Rare Teen Photo Shoot 2016. Using Photography to Raise Awareness on a Global Level. Recent Blog Posts-Please visit our Blog for more stories from our Angels. Michelle-Fibrous Dysplasia, Ehlers-Danlos, Idiopathic Hypereosinophilia.
Folliculin regulates fluid stress-induced mTORC1 suppression in primary cilia. The transcriptional landscape of tuberous sclerosis complex. 100,000 genomic insights into cancer and rare diseases.
What did you learn this year? The firs.
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NORD National Organization for Rare Disorders, Inc.
NORD Webadmin
55 Kenosia Avenue
Danbury, CT, 06813
United States US
NORD National Organization for Rare Disorders, Inc.
Paul Bruno
55 Kenosia Avenue
Danbury, Connecticut, 06813
United States US
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OFFICIAL U.S. SPONSOR. February 29, 2016. About Rare Disease Day. 2015 Recap Press Coverage. Goals and Plans for 2015. Successes from Past Years. History of Rare Disease Day. What is a State House Event? Press Kit and Resources. Partners Supporters. Handprints Across America 2015. Handprints Across America 2014. Handprints Across America 2013. Countdown to Rare Disease Day! Tell your story or follow ours in our active online community. Whats Happening in Your State? From State House events.PARSED CONTENT
The domain has the following in the homepage, "2015 Recap Press Coverage." We observed that the web page also stated " Goals and Plans for 2015." It also stated " History of Rare Disease Day. What is a State House Event? Press Kit and Resources. Countdown to Rare Disease Day! Tell your story or follow ours in our active online community. Whats Happening in Your State? From State House events."SEEK OTHER WEB PAGES
Témoignages de patients atteints de maladies rares et de leurs proches. Pour soumettre vos témoignages, utilisez le formulaire en bas de page. Start your own free website. A surprisingly easy drag and drop site creator.
WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. The 2015 Rare Disease Day theme is Day-by-day, hand-in-hand . Support the campaign by liking the Facebook page.
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Medical research is offering new hope to more than half a million kids who suffer from rare genetic diseases. Our provincial governments need to step up to the plate and make. Rare Disease Foundation - Genetic Testing Petition. The Face of Rare Diseases.
Why Is Getting A Rare Disease Diagnosis So Difficult? An Overview of Spina Bifida. Common Emotions When Diagnosed With a Rare Disease. Sign Up for our Free Newsletters. Please enter a valid email address. Why Join A Rare Disease Support Group? All About Rare Diseases. Understanding Cancers of the Blood Cells. Is it a Rare Disease? Rare Diseases A - Z.